by Richard Stern*
The figures pale in comparison to Africa, but, in the year 2001, many
thousands of Central and South Americans died of AIDS. They died as
martyrs, unnecessarily, because the medications that would have saved their
lives are withheld from them by those who hold power, an elitist group of
physicians and bureaucrats masquerading as "health care" leaders.
I have been an observer of the world of AIDS treatment access for the last
six years or so, with a focus mainly on issues related to Central and South
America.
In the year 2001, we had UNGASS with its macro focus. Politicians who
haven't thought about AIDS before or since flocked to the floor of the
General Assembly to make speeches. UNGASS was not a bad thing as such, but
its impact in Latin America seems to have been minimal. 80 percent of
Guatemalans continue without access to anti-retrovirals in spite of
declarations made by Guatemala's Health Minister at UNGASS focusing on
universal treatment access.
El Salvador's Health Minister spoke at UNGASS of his government's
commitment to Human Rights, and three months later, the Salvadoran Congress
passed into law a bill permitting and encouraging employers to screen
potential job
applicants for HIV/AIDS by requiring an AIDS test. A section of the same law
defiles science and indicates that condoms are not safe and should not be
relied upon for AIDS prevention.
Prices for anti-retroviral medications in Honduras dropped 85 percent, down
to about $1,300 yearly. Yet in bordering Nicaragua, a country even more
impoverished than Honduras, the price for anti-retroviral treatment remains
above $5000 yearly for most cocktails. This phenomenon occurs because UNAIDS
implemented its "Accelerated Access to Care and Treatment" program in
Honduras,
successfully, and multi-national companies reduced their prices
dramatically. However UNAIDS has not acted in neighboring countries
including El Salvador, Guatemala, Belize and Nicaragua, or throughout much
of South America.
UNAIDS argues that it must wait for governments to act decisively before
initiating its "accelerated access," program. But, as a close observer of
what occurred in 2001, in Honduras it is obvious that UNAIDS acted as a
catalyst, assigning three full time Country Representatives to Honduras, and
that the successes which resulted were a result of a "pro-active"
interaction between UNAIDS and the Honduran government. The same occurred
last year in Trinidad and Chile, where ARV
prices have also dropped dramatically.
But UNAIDS' chief negotiator for this program, Badara Samb, is based in
Africa and has only limited time available for other regions of the world, a
situation which must change.
In 2001, Brazil was justifiably recognized throughout the world for its
efforts on behalf of People Living with AIDS. By producing its own
anti-retroviral medications prices have dropped to under $1500 yearly for
anti-retroviral medications, and 105,000 people are receiving treatment.
But Brazil has not taken the extra step of offering its medications
for sale to its neighbors in Latin America. To do so would be a courageous
action that would save thousands of lives in the region. At the moment,
People Living with AIDS in neighboring countries such Paraguay, Ecuador,
Guyana,
and Perú try to cross the border into Brazil, hoping to be assimilated into
Brazil's health care system.
The multi-national pharmaceutical company Merck and Co. offered
significant across the board price reductions for its two anti-retroviral
products, Crixivan and Stocrin, with clear-cut parameters that enabled
developing countries to
estimate where they stand with respect to medication costs.
But the other multi-national companies which produce anti-retroviral
medications, Bristol-Myers, Boehringer Ingleheim, Hoffman La Roche, and
GlaxoSmithKline have not followed suit, creating a chaotic situation of
dramatically differing prices across borders. The situation would improve
significantly if the other major companies would simply follow Merck's
example.
Mysteriously, the Internet "list-serve," known as "Treatment Access" ceased
to function during 2001, at a time when its functioning has become more
critical than ever. "Treatment Access," which had over 1300 subscribers,
provided an opportunity for advocates, People Living with HIV/AIDS, and NGO
workers in different parts of the world to share vital information about a
variety of
themes related to treatment access. "Treatment Access" had been financed
by the Ford Foundation.
The Barcelona World AIDS conference looms on the horizon as the major
international event of 2002, but it is not clear to what extent Conference
organizers will make saving the lives of those who do not have medications a
conference priority. At this point it is no longer sufficient to simply
include "People Living with HIV/AIDS" from the developing world in
conferences at meetings. An outreach effort must be made to include "People
Living with HIV/AIDS who do NOT have access to treatment," and to insure
that their participation in Conference activities is meaningful. The
Durban World AIDS Conference in 2000 focused the world's attention on the
plight of those who live in Africa's poorest nations, and the Barcelona
Conference offers a chance to focus on other areas of the world where access
to treatment is still unavailable.
The much heralded Global Fund For AIDS, Malaria and Tuberculosis, becomes a
reality in January, 2002, but it is still unclear what its newly selected
Board of Directors will have to say about issues related to treatment
access The Global Fund has about seven hundred million dollars available
for this year, much less than what was originally hoped for, but still a
significant sum of money.
Funding for progressive programs promoting grass roots treatment activism
remain virtually non-existent in Latin America, significant exceptions
being the Dutch Foundation HIVOS which supports nearly a dozen NGO
associations run by People Living with HIV/AIDS in the region, and PASCA
(Proyecto Accion SIDA Centroamerica) which has been very active in Central
America promoting human rights for People with AIDS. Yet most significant
changes in health care for People with HIV/AIDS in Latin America have come
from grass roots groups which work with virtually no funds and completely
outside of the elitist health care "establishment."
The Pan American Health Organization (PAHO) which is the Latin American
counterpart of the World Health Organization, continued its woeful record on
AIDS Treatment Access in 2001. PAHO Directors generate lots of publicity
with their statements at International meetings and at Press Conferences,
but, later on, it is hard to find the results of their promised actions.
Over two years ago, PAHO representatives promised the implementation of a
Rotating Fund for the Latin American region, focused on reducing prices of
Anti-retroviral medications. But, as of January 2002, there are no
anti-retroviral medications in the Rotating Fund.
Incredibly, PAHO representatives in Costa Rica recently blocked the
allocation of $50,000 in funds for local non-governmental
organizations. The funds had been designated by UNAIDS during UNGASS as an
emergency measure to help support organizations by and for People Living
with HIV/AIDS in Costa Rica, but PAHO officials made it clear that those
who criticize them will suffer the consequences. Costa Rican NGO's had
criticized PAHO in Costa Rica
for its failure to implement the UN mandated "theme group" in that country.
The non-governmental organization Doctors without Borders continued to play
an important role in treatment access in the region. In June of 2001,
Doctors without Borders sponsored a major regional conference in Antigua,
Guatemala focused on "Access to Essential Medications." Doctors without
Borders coordinates small
programs in various Latin American countries which provide anti-retroviral
medications to several hundred people, but it also plays a major role as an
information broker with regarding to critical issues such as generic
medications and intellectual property.
"Recycled" anti-retroviral medications donated by Agencies in Europe and the
United States also enable perhaps as many two or three thousand Latin
Americans to survive with AIDS.
Indian generic producers were big news in 2001, offering anti-retroviral
cocktails at significantly reduced prices. But the impact of these
reductions has been
negligible in Latin America. The Indian companies have not made an effort to
register and distribute their products in the region, perhaps because Latin
American
markets are small compared to those in Africa and Asia. Intellectual
property laws are not the issue.
There are no anti-retroviral medications patented in most Central American
countries, or in the Andean region which includes Bolivia, Perú, and
Ecuador. In Perú, 9500 people currently need anti-retroviral treatment, and
prices offered by multi-national companies keep the cost of most cocktails
above $5000/yearly. During most of 2001, I have exchanged e-mails with
CIPLA, of India, in relation to selling their products in Central America,
as well as Perú, but as yet, nothing has changed. The products are not
available.
People Living with AIDS in Argentina were facing a crisis even before civil
unrest erupted last month in that country. The government has not yet
assigned a budget for anti-retroviral purchase in 2002, and thousands of
People with
AIDS face death as a result. Argentina, Chile, Venezuela, and Columbia have
been
providing anti-retroviral medications to a significant percentage of the
population of
People with AIDS, but in Bolivia, Perú, Ecuador and Paraguay, more than 90
percent of
PWAs receive no anti-retrovirals. In Central America, only Costa Rica
provides universal access. In the Dominican Republic, 9000 people with AIDS
are without anti-retroviral access.
*Director, Agua Buena Human Rights Association
San José, Costa Rica
Tel/Fax 506-234-2411
www.aguabuena.org